Monday, May 28, 2012
whatever it takes
recovery with brooke continues to be a constant struggle. between her behaviors hitting her face and her wanting to get to her back (partially because of a rash due to the self-adhesive dressing) it is a constant redirection, or holding her arm temporarily. today, for example, after waking up at 5am, bill and I were laying in the bed with her consoling her, holding her hands until she drifted off to rest again. she ate some breakfast which consisted of fruit, yogurt, and a slice of pizza. she kept wanting to touch and scratch her back and hit her face. it was challenging. we gave her a shower to make her feel better then, the LT staff came at 10;30 and stayed til 1:00. during this time, I got her lunch together, did laundry, and sat in my hammock for a bit. our afternoon was a bit more in tense for she got more unsettled, so we gave her some medication to calm her down. I made her dinner, she ate well but behaviors have increased again this evening, I cannot lie, at times, it is extremely stressful and I wonder if we made the right choice of going thru with surgery. you question everything at times like this. on a brighter note.. she is by my side and I desire to do everything to help her get thru this...and I will do whatever it takes.