Friday, January 12, 2007

More on Rett Syndrome

Happy Birthday to my (dani's) dad!!!

Yesterday was our doctors appointment in b/ham. It was insightful and i came away w/assurance in spite of unanswered questions. The doctor said Brooke does not have rett syndrome even thought she carries the gene. Our doctor is one of the leading specialists in this field and is certain brooke may not ever regress because of her age and how much she can do now. So, yesterday was insightful and full of important information to help her obtain the best of what she could and can do. We see this specialist every 6 months for research purposes. Thanks to his staff and their lovingkindness and their knowledge in this area of disability.

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