Monday, August 31, 2009
i told bill the other day i love helping her. i miss blow drying her hair, making her bed, getting her dressed, make her meals. there is something about helping someone that is helpless. just this week i've had a moment like that w/God. I have felt a bit helpless and desired nothing more than to crawl up in His lap. like i desire to help brooke, i know God desires to help me when i'm in need. He amazes me...and brooke amazes me. thank you Lord, for giving her to me...for showing me just how much we are in need of You.
Thursday, August 27, 2009
brooke did very well getting her hair trimmed. she has come along way with this! i found a salon near our house geared just for kids...toys, suckers, and flatscreen tv's. the stylist was great w/brooke. we will be coming back. thanks LT staff and Gail for your help and patience.
Tuesday, August 25, 2009
Monday, August 24, 2009
"she continues to have minimal features of rett syndrome but does have stereotypies in the form of hand wringing, washing, and some finger rubbing and finger knitting movements. she has very purposeful hand use and ambulation. she continues to have aggressive behavior and is on medication. she was alert and interactive and does give reasonably prolonged eye contact. she is quite capable physically and at times has behavioral outbursts with hitting of others and when frustrated may even bite herself. she says a number of words and phrases, much of which is in response to others, but she occasionally comes out with self-generated speech. she does have some persistence of drooling, particularly with food in her mouth. overall i found brooke to be more interactive and in general i was able to examine her the best that i have yet been able to do so. I do believe that her current living arrangements has had a very positive effect on her overall behavior and performance."
there are many "new" things going on w/rett research! this could effect brooke in a big way!
Wednesday, August 19, 2009
i did see her today before she went to the doctor. she was laying in her bed...you could tell she was not well. it makes me sad that i cannot be with her when she is sick...in fear that i may spread it to the cottage. i know, however, she is in good hands. thank you LT for taking care of her.
chicken noodle soup to the rescue!
wish i could be with you brooke. i love you.
Tuesday, August 18, 2009
bill went over last night and dropped off some clothes from my closest and some new clothes i picked up for her. yesterday she didn't have the best of days.
i'm hoping she can come to the cottage on friday. i miss her face. i love you brooke!
Sunday, August 16, 2009
now that is a powerful statement!
Friday, August 14, 2009
Monday, August 10, 2009
just saw brooke last night! she was running thru the house very happy. my thoughts are: they told her that i was coming over and she couldn't help herself get excited. it was a sweet visit. my friend, lonna, was coming thru town and stayed w/us...she met brooke. good timing too!
i'm in love w/that little girl of mine. i miss her little self in my own house.