tag:blogger.com,1999:blog-272367802024-03-07T13:39:15.470-06:00butterflies and brookeA raw expression of mother, daughter, and autismdani-gahttp://www.blogger.com/profile/18272311154681363258noreply@blogger.comBlogger584125tag:blogger.com,1999:blog-27236780.post-41116687926330675742020-05-05T23:11:00.004-05:002020-05-05T23:11:40.672-05:00the splinter<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgMH-MeDjzvcshTD_c4Di5bFp-17uymZ0HjNd-weJUK6Ze4k9E5gGo7ghYQ4cVGrrH-nN36qbif2Wpd-Xz8PUH4_N3bWbAdzJ8aAKTKi9cFRCfZriAMOEMSfYT8KFtfeFzQBCGBEg/s1600/IMG_6857.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1600" data-original-width="1200" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgMH-MeDjzvcshTD_c4Di5bFp-17uymZ0HjNd-weJUK6Ze4k9E5gGo7ghYQ4cVGrrH-nN36qbif2Wpd-Xz8PUH4_N3bWbAdzJ8aAKTKi9cFRCfZriAMOEMSfYT8KFtfeFzQBCGBEg/s320/IMG_6857.jpeg" width="240" /></a></div>
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<span style="font-family: Trebuchet MS, sans-serif;"><b>Have you ever gotten a splinter in your finger or your hand or maybe your foot? </b></span></div>
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<span style="font-family: Trebuchet MS, sans-serif;">Just recently, one of Brooke’s companions took Brooke on a walk at the park near our home. Her companion (of course) stays with her the whole time on the walk...knowing what she touches, sees and what she hears. </span></div>
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<span style="font-family: Trebuchet MS, sans-serif;">after they got home, she started to wash her hands she saw a splinter on the palm of her hand. </span></div>
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<span style="font-family: Trebuchet MS, sans-serif;">now, i don’t know about you, but for some reason that little tiny piece of wood (smaller than a mustard seed, i might add) hurts extremely bad. so much so that heat begins to rise up, turning red, and then a weird pain comes over me that i’ll do whatever it takes to get it out. </span></div>
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<span style="font-family: Trebuchet MS, sans-serif;">i was at work the day Brooke got her splinter. I am sure Brooke felt the same as me when i had gotten splinters. in fact, her companion sent me a picture…her palm was red indicating heat and pain.</span></div>
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<span style="font-family: Trebuchet MS, sans-serif;">when I got off the phone with Brooke’s companion the thought occurred to me that our companion, Jesus, sees every move, hears our every sound, knows what we touch or feel and definitely knows our pain. </span></div>
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<span style="font-family: Trebuchet MS, sans-serif;">that day Brooke trusted her companion to pull out the splinter from the palm of her hand and (to be quite honest) she didn’t even know why or what was there, ONLY her companion knew. </span></div>
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<span style="font-family: Trebuchet MS, sans-serif;">do we trust OUR companion the same way? can we willingly open out the palms of our hands to the One that knows the things that maybe we don’t see?</span></div>
dani-gahttp://www.blogger.com/profile/18272311154681363258noreply@blogger.com0tag:blogger.com,1999:blog-27236780.post-62520111178662711552019-09-13T07:22:00.002-05:002019-09-13T07:42:59.004-05:00God gave me autism<div class="p1" style="-webkit-text-size-adjust: auto; color: #454545; font-family: ".SF UI Display"; font-stretch: normal; line-height: normal;">
<span class="s1" style="font-family: ".sfuidisplay-semibold";">A few weeks ago I was sitting in “The Listening Room” in downtown Mobile listening to Leigh Nash from Sixpence None The Richer. I remember listening to her music with my yellow Sony cassette player at my first real job as an artist in the early 90’s. The setting that night was amazing, but it was her voice and distinguished vibe that drew me to her then and today. Towards the end of the concert, she told the story of her new song, “God gave me horses.” It was the title of the song that grabbed at my heart, and I faded into my own little world for a moment. I instantly started thinking of the idea of God giving me something as majestic, stunning, and strong; yet, graceful as a horse. Autism. </span></div>
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<span class="s1" style="font-family: ".sfuidisplay-semibold";">One thing I know is that God is a gift giver. First off, He gave His only Son for us so that we may have eternal life (John 3:16). It just doesn’t stop there though. For believers, God wishes to gift us in areas of our lives that we aren’t expecting. His character proves that He is kind, loving, gracious and loves to lavish on His children. Knowing this, He would never give His children something that would hurt or harm us. (James 1:17).</span></div>
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<span class="s1" style="font-family: ".sfuidisplay-semibold";">My life has been full of gifts from the Lord, and I’m so thankful! <span class="Apple-converted-space"> </span>For instance, I know God has given me the gift of art: using my hands to portray His love and hope either in mosaics or paintings. Furthermore, He gives little gestures to us, like the kindness from a friend in the time of need. The book of James says, He’s the giver of wisdom, and gives grace and mercy! </span></div>
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<span class="s1" style="font-family: ".sfuidisplay-semibold";">When I think of God giving me a gift, I honestly think of it being something like what a parent, spouse or friend would give, but with the Lord it goes deeper. I know He gives us things in order to build our character into more like Jesus. Many times, we don’t like those gifts very well. They seem hard, painful, unloving, and it becomes a grief-stricken thorn in our side. It’s really an option for us to receive that gift! For, isn’t it easier for us to receive something that brings a smile to our face? Of course! </span></div>
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<span class="s1" style="font-family: ".sfuidisplay-semibold";">I say all this to say, <span class="Apple-converted-space"> </span>I’m certain that God gave me autism. Whew! It’s definitely not a gift I accepted easily, and honestly I never really saw it as a gift for many years. But, yes, God gave me autism in the form of my daughter to mold my character to be more like His. For its this kind of gift that is eternal. She has forced me out of my comfort zone to reach out to those who see with a different perspective. Autism has encouraged me to believe that God is able, and that Brooke is capable. Brooke, has influenced me to love unconditionally without regrets. It’s driven me to have faith, hope, and mostly, love to press forward in what others may call hopelessness. Among other things, I’m forced to depend and rely on God who is Majestic, Stunning, and Strong; yet full of Grace and Truth. </span></div>
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<span class="s1" style="font-family: ".sfuidisplay-semibold";">For I know, God gave me autism.</span></div>
dani-gahttp://www.blogger.com/profile/18272311154681363258noreply@blogger.com0tag:blogger.com,1999:blog-27236780.post-13969929337966211622019-04-23T20:41:00.000-05:002019-04-24T06:56:45.227-05:00Brooke:Finding Her Voice<div class="p1" style="-webkit-text-size-adjust: auto; color: #454545; font-family: ".SF UI Display"; font-stretch: normal; line-height: normal;">
<span class="s1" style="font-family: ".sfuidisplay-semibold";"><span style="font-size: xx-small;">What a ride. What a ride autism can bring in your life. You’re not only are a parent. A mother. A father. A brother. But you become a doctor/nurse. Furthermore, you exasperate every avenue that you possibly can til you find her voice. </span></span></div>
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<span class="s1" style="font-family: ".sfuidisplay-semibold";"><span style="font-size: xx-small;">These past six months have been a ride for sure. From hospital visits via ambulance with constant UTIs to pneumonia to strep throat and to seizure medications that literally put you over the edge. </span></span></div>
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<span class="s1" style="font-family: ".sfuidisplay-semibold";"><span style="font-size: xx-small;">I honestly wish that I could have experienced all of this for Brooke. I would love to extinguish the pain and especially the anxiety and stress in any given day. </span></span></div>
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<span class="s1" style="font-family: ".sfuidisplay-semibold";"><span style="font-size: xx-small;">The past couple months we have been reducing a medication for seizure activity. This medication was given to her at the end of January and literally caused months and days of behavior. I can say today that she is seizure medication free and seizure free!!! Her neurologist and specialist in Retts, Dr Percy, said that we may not see a seizure for two months or it could be two years you never know. I am praying and <span class="Apple-converted-space"> </span>banking on forever. Our daughter became a different person with the seizure medication that she was on. We are so thankful for her to be off of it today. We also are very thankful for all the advice given to us with this medication. </span></span></div>
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<span class="s1" style="font-family: ".sfuidisplay-semibold";"><span style="font-size: xx-small;">I am so thankful for her companions that have stuck with her and our family for the past several months day in and day out. They not only have been a source of encouragement but accountability and sweet care for Brooke, I really have no words for them except that they are a gift from God! </span></span></div>
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<span class="s1" style="font-family: ".sfuidisplay-semibold";"><span style="font-size: xx-small;">Now we are having a new med change. Because there’s no longer a seizure medication, which also helped with being a mood stabilizer, <span class="Apple-converted-space"> </span>her anxiety has gotten worse day by day. The anxiety is contributed to really anything and everything. We take for granted going into stores or having people in our homes and things that come our way within a day. For Brooke because she cannot express her self it is difficult for her to understand. Every day we tell her what is going on in our day and what is happening, but obviously sometimes it just doesn’t click. Her anxiety is very evident and she becomes extremely clingy and she rubs her hands constantly or she starts to pick at her skin so it starts to bleed. </span></span></div>
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<span class="s1" style="font-family: ".sfuidisplay-semibold";"><span style="font-size: xx-small;">As of tomorrow she is starting a new medication for anxiety. We are hoping that this really helps her become more stabilized. </span></span></div>
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<span class="s1" style="font-family: ".sfuidisplay-semibold";"><span style="font-size: xx-small;">As of the end of July Brooke will be home for twoyears! This jubilee homecoming obviously over exceeds any pain and stress that have come to our family. However it is stressful! Autism is a ride for sure and one sometimes that you just want to get off of. Brooke doesn’t get that choice though, she’s on it for a lifetime. As her mother I’ll be her sidekick and forever friend. Forever doctor. Forever nurse. Forever mother. Always trying to find her voice. </span></span></div>
dani-gahttp://www.blogger.com/profile/18272311154681363258noreply@blogger.com0tag:blogger.com,1999:blog-27236780.post-11540729751512262762018-01-16T09:44:00.001-06:002018-01-16T14:54:08.375-06:00a call in the night<div style="color: #454545; font-family: ".SF UI Display"; font-stretch: normal; line-height: normal;">
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<span style="font-family: ".sfuidisplay-semibold"; font-weight: bold;"><span style="font-size: large;">i had noticed that brooke had not been feeling well on saturday. she was quiet in her chatter, she wasn’t smiling like she normally does, and i could tell she wasn’t her typical self. </span></span></div>
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<span style="font-family: ".sfuidisplay-semibold"; font-weight: bold;"><span style="font-size: large;">early sunday morning around 4am i woke to take brooke to the bathroom but before i got out of bed i heard coming from her bedroom a sound. i became a bit more alert and then i heard a distress sound of “Mommmma” and then seconds later, “Mommmy”. i jumped up out of bed and went to her room. she just looked at me as if she was asking for help. i asked her if she was hurting, no words this time but a grunt and she slapped her head (a sign of pain). i grabbed some medicine for her and covered her back up to go back to sleep. when i was about to walk out of her room she looked at me and with a much calmer tone and said, “mommy”. i smiled and said, “you’ll feel better soon, i love you.”</span></span></div>
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<span style="font-family: ".sfuidisplay-semibold"; font-weight: bold;"><span style="font-size: large;">ok. wow! i’ll never forget this day, not because she was in pain, but that she called out for me because she was in pain. she has NEVER intentionally called out my name for me to come and help her. i got back in bed and honestly, could not sleep. i was so excited that she called my name when she was hurting. </span></span></div>
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<span style="font-family: ".sfuidisplay-semibold"; font-weight: bold;"><span style="font-size: large;">there have been many times i’ve done that with the Lord. i’ve been hurting, grieving, sad, or struggling with something personal that in the middle of where i was just saying His name, “Jesus”, brought comfort, healing, peace, security.... for when we say His name, we don’t just get a piece of Him, we get all of Him and all that His name promises to be! it’s His very nature to respond. He is near to us when we cry, mumble, or just whisper His name. </span></span></div>
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<span style="font-size: large;"><span style="font-family: ".sfuidisplay-semibold"; font-weight: bold;">“The Lord is near to all who call on him, to all who call on him in truth.” Psalms </span><span style="direction: ltr; font-family: ".sfuidisplay-semibold"; font-weight: bold; unicode-bidi: bidi-override;">145:18</span><span style="font-family: ".sfuidisplay-semibold"; font-weight: bold;"> </span><span style="direction: ltr; font-family: ".sfuidisplay-semibold"; font-weight: bold; unicode-bidi: bidi-override;">ESV</span></span></div>
dani-gahttp://www.blogger.com/profile/18272311154681363258noreply@blogger.com1tag:blogger.com,1999:blog-27236780.post-77148858084158832662018-01-06T08:39:00.002-06:002018-01-06T09:10:22.887-06:00step by step<div style="color: #454545; font-family: ".sf ui display"; font-stretch: normal; line-height: normal;">
<span style="font-family: ".sfuidisplay-semibold"; font-weight: bold;">we have had so many great adventures since brooke has been home. clearly she is so happy and we are elated that our family is back together again. we have daily activities that get us out and about and in the community. however, everyday we try and walk (weather permitting) around the block or at the park nearby. one particular day we started off on our walk in our neighborhood but something was wrong. one thing about walking with brooke is that she likes to walk closely to you, almost hip to hip, holding your hand or arm. it’s actually pretty sweet! however, something was off during our walk that day. as we went around the block our step was off and our arms hit each other as we walked. we got home and the Lord started speaking to me personally. it was like i could verbally hear Him, “Dani, we have to walk step by step, in sync, getting off step with Me can cause you to miss out on what I have for you, abide with Me.” i have been thinking about that day and the way Brooke challenges me without words. i was reminded of a song by Jesus Culture “Where You Go I Will Go”</span></div>
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<span style="font-family: ".sfuidisplay-semibold"; font-weight: bold;">-What You say I say</span></div>
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<span style="font-family: ".sfuidisplay-semibold"; font-weight: bold;">What You pray I pray</span></div>
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<span style="font-family: ".sfuidisplay-semibold"; font-weight: bold;">Jesus only did what He saw You do</span></div>
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<span style="font-family: ".sfuidisplay-semibold"; font-weight: bold;">He would only say what He heard You speak</span></div>
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<span style="font-family: ".sfuidisplay-semibold"; font-weight: bold;">He would only move when He felt You lead</span></div>
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<span style="font-family: ".sfuidisplay-semibold"; font-weight: bold;">Following Your heart, following Your spirit</span></div>
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<span style="font-family: ".sfuidisplay-semibold"; font-weight: bold;">How could I expect to walk without You</span></div>
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<span style="font-family: ".sfuidisplay-semibold"; font-weight: bold;">When every move that Jesus made was in surrender</span></div>
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<span style="font-family: ".sfuidisplay-semibold"; font-weight: bold;">I will not begin to live without You</span></div>
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<span style="font-family: ".sfuidisplay-semibold"; font-weight: bold;">For You alone are worthy, You are always good-</span></div>
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<span style="font-family: ".sfuidisplay-semibold"; font-weight: bold;">Brooke reminded me that day it’s imperative to walk closely by My Lord, walking in step with His Spirit, abiding, clinging, lingering long, and in a sweet surrender. </span></div>
dani-gahttp://www.blogger.com/profile/18272311154681363258noreply@blogger.com1tag:blogger.com,1999:blog-27236780.post-85707788093288732162017-12-15T06:49:00.000-06:002018-01-06T08:47:14.046-06:00our complete jubilee story! <div style="color: #454545; font-family: ".SF UI Display"; font-size: 23px; font-stretch: normal; line-height: normal;">
<span style="font-family: ".sfuidisplay-semibold"; font-size: 23pt; font-weight: bold;">We moved to South Alabama, in 2008 to be closer to Brooke as she started attending The Learning Tree in Mobile, Al. We became houseparent at the Alabama Baptist Children's Home, taking care of children who had been abused, abandoned, or broken from their current situation. There is a two child maximum as houseparents so it became our intentions to look for other employment so we could bring Brooke home one day; but it never seemed to happen. The boys, Josiah and Ethan started attending a near-by private school. All seemed well, but our hearts longed for Brooke to be with us. She has never been far from us, seeing her now daily for 8 years never becomes weary. As houseparents we shared a home on our off time with the other houseparents and; often got Brooke for slumber parties or just for family dinners. Sharing a home for many years we desired having our our own that we could call ours. Bill and I began looking and searching for something but never was successful. </span></div>
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<span style="font-family: ".sfuidisplay-semibold"; font-size: 23pt; font-weight: bold;">We attend a fruitful and grounded church in our area. One Sunday our pastor, Brett, shared a prayer request that I became broken over. Valerie, a lady in our church had been in an accident that almost cost her her life. I remember kneeling praying for her (who i had not yet met), and she was never far from my thoughts. One year later I was asked to paint one of my palm paintings in our church service. Before I went in that day I was sitting in my car praying, I looked up and saw a woman with a slight limp and a man helping her. I knew that had to have been Valerie that was in the accident a year prior. I prayed for her that morning. About a week after that event a friend of mine called me and said Dani "do you know Valerie Boatman?" I said, "no, I don't, but I've been wanting to meet her". My friend later sent me a picture of Valerie standing next to the Jesus I had painted! Wow... I knew I needed to meet her. The following week I introduced myself to her at church and I knew upon meeting her we were kindred spirits. Soon after we met for lunch and then soon after her and her husband, Wayne, came for dinner at the children's home. The Lord began spinning our hearts together but we all had no idea why. </span></div>
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<span style="font-family: ".sfuidisplay-semibold"; font-size: 23pt; font-weight: bold;">As Bill continued to look at different homes for us in our area he found one that seemed suitable. We all went to look at the house. I was trying to imagine my life there but when I walked upstairs my mind shifted. Covering the whole wall upstairs was chalkboard paint! As I looked carefully at the faded and discolored chalk, I noticed that what was written on the wall was a bible verse. The words were "those that wait upon the Lord will not faint, they will run and not be weary, walk and not faint". I knew at that moment we were to wait. I did not understand that at the moment, but I was pretty determined that Jesus was speaking clearly to us. The next home bill located was in a great area but needed lots of repair; however, we were excited to take on the DIY makeover! After dropping the price about $20,000 we seemed confident that this was the reason God told us to wait. We put a contact on the house and our realtor prayed with us in the kitchen asking God to give us direction and wisdom. That next week we saw Wayne and Valerie at church and they told us they would bring over some thanksgiving food for the boys. The next day Wayne showed up and brought lots of food over just as he promised. Bill and Wayne walked outside to talk and when Bill came in he told me he wanted to tell me something. Standing in the kitchen at the children's home Bill said, "So, Wayne and I were talking and Wayne asked me, "Is there anything else I can do for you?" And I told him that we had just put a contact on a house and we might need some contractors names because we were going to be gutting the house. Wayne stopped me and said, "Wait, you need a house? I gotta house and you can have it!""</span></div>
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<span style="font-family: ".sfuidisplay-semibold"; font-size: 23pt; font-weight: bold;">I was like...what?! You have got to be kidding me! I instantly wanted to talk to Valerie. Needless to say, the very next day we got a call from our realtor saying the house we had put a contract on had gone to someone else!!! </span></div>
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<span style="font-family: ".sfuidisplay-semibold"; font-size: 23pt; font-weight: bold;">A few days later we went to see the house. I was in awe as I walked around inside. I didn't see anything, I just heard laughter, stories, tears, scripture, pain, and pure joy!</span></div>
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<span style="font-family: ".sfuidisplay-semibold"; font-size: 23pt; font-weight: bold;">I saw Valerie at church that Sunday. She said, "Dani, you may not like the location, or the house, but if you do it's yours if you want it." I stood there speechless and in awe at the Lord and what He was doing. We spoke a few more words to one another and then I asked her, "what's the street name?" She said "Locarno." I went to my seat in church and looked up the word on my phone and was amazed to read that "Locarno" was a treaty between Switzerland and Europe years ago, the treaty meant "Peace for the future". Wow. We were both speechless as God had given us hope for our future! Seven years prior to this the Lord had opened my eyes to this hope called a jubilee. The idea behind jubilee in Leviticus 25 is a beautiful promise to Gods people to give them hope. We held on to this hope for our family knowing that the Lord would one day give us this jubilee.</span></div>
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<span style="font-family: ".sfuidisplay-semibold"; font-size: 23pt; font-weight: bold;">“...it shall be a jubilee unto you; and ye shall return every man unto his possession, and ye shall return every man unto his family.” Leviticus </span><span style="direction: ltr; font-family: ".sfuidisplay-semibold"; font-size: 23pt; font-weight: bold; unicode-bidi: bidi-override;">25:10</span><span style="font-family: ".sfuidisplay-semibold"; font-size: 23pt; font-weight: bold;"> </span></div>
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<span style="font-family: ".sfuidisplay-semibold"; font-size: 23pt; font-weight: bold;">The gift from Wayne and Valerie of the house on Locarno was the first concrete step toward the fulfilling of Gods promise for our family. This allowed us to start the process of bringing brooke home. The next step would be arranging in home care for brooke; because of our position as houseparents we would need a lot of in home care hours for brooke. We made our initial request and after back and forth, and justifications for the amount of time needed our request was approved! Clearly God had gone before us and made provisions. Soon after the Lord opened doors for Bill to have another job so we could all be together. We left our jobs at the Alabama Baptist Childrens Home and in July, (2017) we were able to bring Brooke home to live with us! What a reunion! What a jubilee! What a Savior! </span></div>
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dani-gahttp://www.blogger.com/profile/18272311154681363258noreply@blogger.com0tag:blogger.com,1999:blog-27236780.post-67307614260100654892017-05-02T08:08:00.000-05:002017-05-02T08:08:16.495-05:00Our Jubilee is present! <div style="color: #454545; font-family: '.SF UI Text'; font-size: 19px; line-height: normal;">
<span style="font-family: '.SFUIText-Semibold'; font-size: 19pt; font-weight: bold;">“You shall thus consecrate the fiftieth year and proclaim a release through the land to all its inhabitants. It shall be a jubilee for you, and each of you shall return to his own property, and each of you shall return to his family.”</span></div>
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<span style="direction: ltr; font-family: '.SFUIText-Semibold'; font-size: 19pt; font-weight: bold; unicode-bidi: bidi-override;">Leviticus</span><span style="direction: ltr; font-family: '.SFUIText-Semibold'; font-size: 19pt; font-weight: bold; unicode-bidi: bidi-override;"> </span><span style="direction: ltr; font-family: '.SFUIText-Semibold'; font-size: 19pt; font-weight: bold; unicode-bidi: bidi-override;">25:10</span><span style="direction: ltr; font-family: '.SFUIText-Semibold'; font-size: 19pt; font-weight: bold; unicode-bidi: bidi-override;"> </span><span style="direction: ltr; font-family: '.SFUIText-Semibold'; font-size: 19pt; font-weight: bold; unicode-bidi: bidi-override;">NASB</span></div>
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<span style="font-family: '.SFUIText-Semibold'; font-size: 19pt; font-weight: bold;">This was the verse the Lord gave to me 8 years ago. I found myself believing that He alone would bring it to pass as I hung on tightly to the promises He had spoken over me. Since then, the Lord provided a home for us and He has provided a way for Brooke to return to her family! Our jubilee is at our front door and awaiting new possibilities! The Lord is faithful! </span></div>
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<span style="font-family: '.SFUIText-Semibold'; font-size: 19pt; font-weight: bold;">There are several things that still need to occur as we all make this exciting transition. At this point it's a matter of waiting on the details to be finalized. The reunion is no longer a distant reality but a close and present hope. </span></div>
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<span style="font-family: '.SFUIText-Semibold'; font-size: 19pt; font-weight: bold;">“There is hope for your future,” says the Lord. “Your children will come again to their own land.”</span></div>
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<span style="direction: ltr; font-family: '.SFUIText-Semibold'; font-size: 19pt; font-weight: bold; unicode-bidi: bidi-override;">Jeremiah</span><span style="direction: ltr; font-family: '.SFUIText-Semibold'; font-size: 19pt; font-weight: bold; unicode-bidi: bidi-override;"> </span><span style="direction: ltr; font-family: '.SFUIText-Semibold'; font-size: 19pt; font-weight: bold; unicode-bidi: bidi-override;">31:17</span><span style="direction: ltr; font-family: '.SFUIText-Semibold'; font-size: 19pt; font-weight: bold; unicode-bidi: bidi-override;"> </span><span style="direction: ltr; font-family: '.SFUIText-Semibold'; font-size: 19pt; font-weight: bold; unicode-bidi: bidi-override;">NLT</span></div>
dani-gahttp://www.blogger.com/profile/18272311154681363258noreply@blogger.com0tag:blogger.com,1999:blog-27236780.post-47746256499635837482015-07-18T13:18:00.001-05:002015-07-18T13:18:22.853-05:00shower time
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<span style="font-family: Calibri;">There are rare moments in life when you hear the Lord
whispering in your ear. Yesterday, was one of those sweet encounters and almost
visually speaking. </span></div>
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<span style="font-family: Calibri;">Yesterday I decided to get Brooke for a visit at the Children’s
Home. It was so hot outside I knew we would be spending most of the day inside
allowing the kids to play games, puzzles, or just watch a good movie.<span style="mso-spacerun: yes;"> </span>When I picked her up from school it looked as
if she had had a rough, hot morning.<span style="mso-spacerun: yes;"> </span>I
knew a good shower was on our agenda.<span style="mso-spacerun: yes;">
</span>After we all had lunch I told Brooke, “Let’s go take a shower.” She
walked into the bathroom to get ready. For those who are unware Brooke cannot
shower herself.<span style="mso-spacerun: yes;"> </span>She does know some
self-help skills and shower time is one we are working on.<span style="mso-spacerun: yes;"> </span>I wash her thoroughly, shampoo and condition
her hair, shave her legs, then I allow her time to just let the water fall on
her. </span></div>
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<span style="font-family: Calibri;">After I got her all clean I sat her down while I started
gathering her garments, one by one, to put them on her. (I think you get the
idea). I had noticed while I bathed her that she had many sores/bruises so I
knew I wanted to put some ointment on her to help them heal. I grabbed my
Neosporin and one by one started applying them on her arms, legs, ankles, and
wrist. Then, it happened…..as if Jesus was standing in our small bathroom
whispering over my shoulder to Brooke and to myself. His voice was so clear as
He said to me, “This is exactly what I do for you, Dani.” </span></div>
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<span style="font-family: Calibri;">Tears whelped up in my eyes as I re-thought the whole process
of bathing her and caring for her needs. In such an intimate and personal way
Jesus meets us where we are and cleanses us.<span style="mso-spacerun: yes;">
</span>We are so helpless and without His touch we cannot be clean, we cannot
be healed, we are incapable of doing it ourselves.<span style="mso-spacerun: yes;"> </span>He not only leaves us there cleansed, but He
comes closer and applies His touch to heal our deepest sores/hurts/scars, those
visible and invisible. <span style="mso-spacerun: yes;"> </span></span></div>
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<span style="font-family: Calibri;">I left that bathroom different than I entered. It was a
beautiful picture of His loving-kindness and in the most vulnerable and
intimate way. </span></div>
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<span style="font-family: Calibri;">He says to us in Jeremiah 31 to expect love and more
love…and yesterday was no exception. He is the balm of Gilead and He has
promises us that He will heal us and He is mighty to save. (Jeremiah 17:14)</span></div>
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<span style="font-family: Calibri;">Thank you Brooke for being so vulnerable and for being His
instrument once again.</span></div>
dani-gahttp://www.blogger.com/profile/18272311154681363258noreply@blogger.com0tag:blogger.com,1999:blog-27236780.post-58154610579223390562014-05-15T16:09:00.000-05:002014-05-15T16:29:09.428-05:00blessed are those...The Lord has given me a great promise (see 'jubilee' post) that Brooke will one day be back home with us. as a mother, I yearn for that day! this morning when I woke my heart was heavy for this promise. I have learned to be content in my present circumstance (Phil 4:11). however, there are some days the tears flow and the longing awakens something within me. today, was no doubt....one of those days.<br />
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I love the unique gift of friendships! The Lord knows what we need and when we need it. when a friend prays for you on your behalf when words can't seem to escape your mind....there have been those times when friends reach the throne of God to help in the time of need. The Lord has special ways to comfort our weary hearts.<br />
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coupled with that, it's sweet when complete strangers approach you too. this afternoon a lady at SAMs asked me what my necklace said. I said "a mother knows the words that her child cannot say". after I told her that my daughter had autism, she said.... "I'm gonna pray for you, because that's what it is about, that's how we do things."<br />
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I smiled and told her thank you. I was so thankful that thru our small conversation The Lord comforted my heart.<br />
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Blessed are those who mourn, for they WILL be comforted. Matthew 5:4<br />
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are you weary and mourning today? He is faithful in His love and will comfort you in due time.<br />
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dani-gahttp://www.blogger.com/profile/18272311154681363258noreply@blogger.com1tag:blogger.com,1999:blog-27236780.post-63883249213080606892013-10-27T18:38:00.000-05:002013-10-27T18:38:37.540-05:00caterpillars and butterfliesI have 2 tattoos on each of my wrist. one, ebed (Hebrew for slave to Christ), and second, a butterfly (in flight). my butterfly tattoo, created by a local artist, was engraved in my wrist for Brooke. <br />
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someone recently asked me what they both meant and I love sharing the stories of each of them. I shared with her that after the butterfly tattoo was done weeks later I realized that in the engraving was a capital "B". I thought that it was super cool that the artist designed it that way and without her knowledge of my daughter. several more week later a dear friend of mine called me after looking thru a James Avery Craftsmen magazine and told me that I needed to look immediately at the necklace called "Mother's Love". I was blown away that the same symbol in the necklace was also in my butterfly tattoo. in telling my story to my friend, I told her I had no idea of either symbols in the tattoo...but that the reason I chose a butterfly was because of her name. Brooke's middle name is Renee', which means "born again". [Born again can be recognized as the symbol of a caterpillar turning into a butterfly]. my new friend quickly said, "I didn't think you were going here with that story. Do you know how you say "caterpillar" in Latin"? ummm, well, no. she then told me, "brookum", actual translation, "bruchum". <br />
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I was blown away as I think my jaw hit the floor. Who knew when we named brooke, almost 17 years ago that her name would have such a powerful meaning. a caterpillar changing into a beautiful butterfly. proves to say that there's really a lot in a name...<br />
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I've always thought that when she get to Heaven the Lord will give her a new name. I can only imagine what that "new" name might be. For now, she's learning how to fly.dani-gahttp://www.blogger.com/profile/18272311154681363258noreply@blogger.com0tag:blogger.com,1999:blog-27236780.post-86375804730386214932013-03-30T10:40:00.002-05:002013-03-30T10:40:34.545-05:00running for a reasoni consider myself to be pretty athletic gal. when i was younger i ran track. 50 yard dash and so on. i was an ok runner, but i loved to run. i played basketball in elementary and then a bit in high school. then i played softball. i was a catcher for our team. now, at 42, i feel myself getting up from a fast pitch and throwing it down the straight line to second base, in an attempt for an easy out, and my knees hurt. ha!<br />
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after you have children you wonder what sport will they play. when i had brooke, it crossed my mind she would be a runner. after all, she had bill's legs. now, i know she will never run (like you and me). she has other traits that i find courageous and that i could never do...so im ok, now, that she will never run. <br />
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i'm blessed to know certain people in my life. some i've never met, or will meet...but have had the unique experience to find them thru this crazy computer. it's not that they aren't real, but just the opposite...they are very real and raw and vulnerable people. amy courts is one of those. amy is an artist. she writes/sings...and with her music she has brought me into the presence of God. rare. <br />
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a few weeks ago, via facebook, she sent me a PM that stated this:<br />
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"you may or may not know this, but i've joined a group here on FB called "i run for Michael"...we pair runners and athletes with special needs people who can't or don't or won't be able to run like we do...and we run for them. for us runners, it just gives us something bigger to run for...it gives us a person. anyway, we are working on pairing up some more runners but we need more kiddos! I immediately thought of you and your incredible kids who have autism."<br />
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wow! was my immediate thought. i went to the site and found runners or walkers or others that were doing cross country and that were running/doing for a purpose, for a person that could never run. incredible! i told amy, "yes! find brooke a runner."<br />
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within hours we had a match. Brooke's runner is a lady named Yvonne. Again, its funny how the Lord knows just who to send in your life. Her story is one of strength, courage, grief, and passion. <br />
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i just had to express this story. it's one of selflessness and gratitude. it's one of strength and dying to self. it's one of honoring another.<br />
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and, personally, as a mother of one that can't run...i'm humbly grateful.<br />
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it's more than a gesture to me. <br />
it gives life. <br />
it gives hope. <br />
it offers a chance to feel the wind in your hair and have a fresh breath of air in your lungs.<br />
dani-gahttp://www.blogger.com/profile/18272311154681363258noreply@blogger.com0tag:blogger.com,1999:blog-27236780.post-79809822191768069252013-03-05T20:31:00.001-06:002013-03-05T20:34:44.451-06:00sweet 16/march 6<span style="-webkit-composition-fill-color: rgba(130, 98, 83, 0.0976563); -webkit-composition-frame-color: rgba(191, 107, 82, 0.496094); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.296875); -webkit-text-size-adjust: auto; font-family: MarkerFelt-Thin; font-size: 18px; line-height: 24px;">Brooke,</span><br />
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God has continued to grow you into His masterpiece...and what masterpiece you are. I love how, with every stroke He formed and made you. You are His...and I'm thankful He gave me you. </div>
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In these past 16 years you have taught me some valuable lessons. You exhibit strength, beauty, loving kindness, patience, dependency in your creator, joy, peace, and HOPE. </div>
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[with just glance in your eyes you give me energy and strength. holding your hand I sense your passion. watching you sleep I see your at peace. seeing tears in your eyes i know your struggle will one day end.]</div>
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you simply amaze me! </div>
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I'm a better woman because of you. </div>
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I love you brookie!</div>
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happy 16th birthday to my sweet girl!</div>
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momma. </div>
dani-gahttp://www.blogger.com/profile/18272311154681363258noreply@blogger.com0tag:blogger.com,1999:blog-27236780.post-69909707236175218652012-10-27T22:31:00.002-05:002012-10-27T22:31:51.225-05:00the move<span style="-webkit-composition-fill-color: rgba(130, 98, 83, 0.0976563); -webkit-composition-frame-color: rgba(191, 107, 82, 0.496094); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.296875); -webkit-text-size-adjust: auto; font-family: MarkerFelt-Thin; font-size: 18px; line-height: 24px;">as of a few weeks ago, Brooke has been a resident at TLT for 4 years now. in the past four years she has grown into a beautiful, courageous, determined, brave, strong, and lovely lady. </span><div style="-webkit-composition-fill-color: rgba(130, 98, 83, 0.0976563); -webkit-composition-frame-color: rgba(191, 107, 82, 0.496094); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.296875); -webkit-text-size-adjust: auto; font-family: MarkerFelt-Thin; font-size: 18px; line-height: 24px;">
this past week, Brooke moved, but just into another group home. the move is going to be good for her. her school opened up a new home to accept 2 new girls. so, Brooke now has new roommates. I've already met one of them. I'm excited for her and her family!</div>
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however, you know me, I'm a thinker. for 4 years Brooke has lived with 2 of the greatest ladies. even though I told Brooke she was moving I knew she wouldn't understand it fully until the move occurred. it just made me think though, what if I moved away from someone I was used to seeing everyday for 4 years. (grant it, they will continue to see one another at school/some weekends). I know that that would make me sad. brooke is not one to express emotions much, so I tend to forget, emotionally speaking, what all she goes thru in a day, what she thinks about, who she misses, and all the other stuff girls go thru. </div>
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tonight, as I left Brooke I leaned in and told her like I do every night I see her, "Brooke, Jesus has got you." after I said it, I said out loud again, "Brooke, Jesus does reeeeaally got you." </div>
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He holds her tears in His bottle, prays for her when she cannot udder a word, walks with her, sings over her, embraces/speaks to her while she sleeps, and provides for her needs without her even knowing them. </div>
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I don't know if Brooke misses her little friends, I know I sure would. but, what I do know is.... Jesus does have her and He quickly desires to fill the void. </div>
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at that moment, The Lord spoke to me and reminded me of that simple truth. </div>
dani-gahttp://www.blogger.com/profile/18272311154681363258noreply@blogger.com0tag:blogger.com,1999:blog-27236780.post-82036889791636835782012-06-13T17:27:00.000-05:002012-06-13T17:27:38.114-05:00peace on every sidethis past saturday we took brooke back to the group home. it was raining so badly when i drove her to the house. after caring for her while at the hospital and at home my heart only grew stronger and sweeter for brooke. i dreaded the day. the rain outside became the condition of my heart. <br />
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after getting her in the house, she went to her room, turned around, and began walking towards the door to go outside. i can't tell you how many times we redirected this so she would settle in on the couch or in her room. i pulled out books or movies to help her settle down, but she was began bitting herself and became verbally upset saying, "i wanna be with mommy," or, "i wanna see mommy." needless to say, this only made the rain pour harder within my spirit. after signing information and sharing details, i walked out in the pouring rain not caring whether or not my clothes were drenched.<br />
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i got in my car and began praying for peace for her. i remembered a passage of scripture in II Chronicles 20:30 "the Lord gave them peace on all sides." i prayed that passage over her and drove away. thankfully we had plans to hang with friends for the day, so, once i got home we left. my heart was heavy throughout the day, but the Lord sustained me.<br />
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on sunday, i went to see brooke again at the group home. it was still raining in our area, but it was much more of a sprinkle. when i walked into the door brooke saw me, grabbed my hand, and walked me to the door yet again. i died inside. i wanted just to leave with her, but i knew she needed time to adjust and i needed time too. earlier that day at church, we had heard such an encouraging message about, "be still and know that I am God." he talked about the the word, "still" actually meaning in the Hebrew the idea of your hands being by your side. in the sermon he also mentioned the very passage i had prayed over her in II Chronicles 20. i was amazed, but at the same time i left assured that God indeed would give her "peace on every side." thinking on the message, i left the group home once again but this time...with a peace of mind and my hands by my side....knowing that He was God and He was at work.<br />
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Brooke has done really well during her recovery and she continues to improve behaviorally. We have heard she has little to no behaviors throughout her day. was it that she was hurting so badly before her surgery that she was displaying bad behavior as a way to communicate? who knows, really. i do know we are in good place with her, and that....gives me peace on every side.<br />
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thank you for your constant prayers and love. i once heard, "rich is the one who has a praying friend." Brooke is very rich!dani-gahttp://www.blogger.com/profile/18272311154681363258noreply@blogger.com0tag:blogger.com,1999:blog-27236780.post-45121772723992631842012-06-02T07:40:00.002-05:002012-06-02T07:40:19.134-05:00updateBrooke got her staples out on Thursday. she did really well sitting there watching her favorite show. afterwards we treated her to a slushy.
apparently, the staples were very bothersome to her because she isn't so insistent on scratching her back.
Brooke has been off pain meds now for 3 days and seems to be ok with no pain. she's been very active, going on walks and pacing in the hallway. bill and I took her to fairhope the other day. she enjoyed the ride and the walk.
she finally slept longer than 4 hours last night. after going to bed around 8 last night so did I. we both slept til 3:00. she drifted a bit after that, but nothing to be excited about. her behaviors started picking up and I believe it kept her up and me.
we are still tackling her behaviors (slapping face). what a beast this is. this behavior is more bothersome for me than any other she has had because it targets the face.
Monday, she'll start going to school for a couple of hours to get her back in the swing of things. June 9, saturday, we will take her back to her group home. this will be a tough day.. prolly more for me than her.
all in all, she is a trooper, a tough cookie and an amazing little lady. Thank you all for those that have been praying for us. thank you for the wonderful meals and sweet treats. all have been such perfect timing and a gift from God. dani-gahttp://www.blogger.com/profile/18272311154681363258noreply@blogger.com0tag:blogger.com,1999:blog-27236780.post-61784508359652398742012-05-29T18:09:00.001-05:002012-05-29T18:09:08.420-05:00long dayour day started at 3:00am. Brooke woke up and didn't go back to sleep. she has been very restless and agitated.
come 7:00a.m. I was feeling the effects of just 3 hours of sleep. I knew several friends had been praying, and knowing I needed the encouragement to finish the day and finish well I called on them for help. by 1:00p.m. brooke was less frustrated. however, just over an hour a go... she has been extremely upset! I gave her some loritab thinking she was in back pain. she's very aggressive and verbally upset (yelling). she still has not slept since 3am.. and neither have we.
i just hurt for her...wanting her to be comfortable, at ease, and especially I want her to sleep. she has been thru a lot in the last week but I'm confident the Lord is listening..and in His timing will make all well. dani-gahttp://www.blogger.com/profile/18272311154681363258noreply@blogger.com0tag:blogger.com,1999:blog-27236780.post-47156408218172423852012-05-28T22:13:00.001-05:002012-05-28T22:13:25.722-05:00whatever it takesrecovery with brooke continues to be a constant struggle. between her behaviors hitting her face and her wanting to get to her back (partially because of a rash due to the self-adhesive dressing) it is a constant redirection, or holding her arm temporarily. today, for example, after waking up at 5am, bill and I were laying in the bed with her consoling her, holding her hands until she drifted off to rest again. she ate some breakfast which consisted of fruit, yogurt, and a slice of pizza. she kept wanting to touch and scratch her back and hit her face. it was challenging. we gave her a shower to make her feel better then, the LT staff came at 10;30 and stayed til 1:00. during this time, I got her lunch together, did laundry, and sat in my hammock for a bit. our afternoon was a bit more in tense for she got more unsettled, so we gave her some medication to calm her down. I made her dinner, she ate well but behaviors have increased again this evening, I cannot lie, at times, it is extremely stressful and I wonder if we made the right choice of going thru with surgery. you question everything at times like this. on a brighter note.. she is by my side and I desire to do everything to help her get thru this...and I will do whatever it takes. dani-gahttp://www.blogger.com/profile/18272311154681363258noreply@blogger.com1tag:blogger.com,1999:blog-27236780.post-41317708222855575632012-05-27T12:37:00.003-05:002012-05-27T12:37:51.617-05:00collapseevery now and again I see how helpless brooke is without someone with her at all times. a few years ago our whole family, including brooke, went to Nashville. while visiting, we went to Opryland Hotel. the hotel is my moms favorite, so we enjoyed walking around seeing shops and enjoying each others company. we decided to take the elevator up to another floor and before you know it Brooke had gotten in the elevator and the doors shut! within seconds my mind raced to what could've happened when the doors opened again on another floor without us. she wouldn't know where she was. she wouldn't be able to say who she was with or how to find her family. and at the time, she would not have been able to say her name to those trying to help her. helpless. however, we quickly pushed the button and the doors opened before it speed off to another floor. I remember grabbing her, holding her, telling her it was "ok."
not only is Brooke helpless, but so am I. today a dear friend said something to me that reminded me of my helplessness. the phrase she said was, "collapse in His arms." being the thinker that I am I looked up the word "collapse." Webster puts it this way, "to fall abruptly, to break down completely, to cave or fall in, to fall helpless." I couldn't help but see myself, or those that know Christ, fall helplessly in His arms..almost like i was fainting.
I love the idea that Jesus is my all and all. I love the fact that when I fall helpless or when I'm wondering helplessly as Brooke does...that He is there without any hesitation. and, in doing so there's no need for me to speak or utter a sound...He knows. its then He grabs me, holds me, and tells me, "you are ok."dani-gahttp://www.blogger.com/profile/18272311154681363258noreply@blogger.com1tag:blogger.com,1999:blog-27236780.post-51230061834950279542012-05-26T08:16:00.001-05:002012-05-26T08:16:34.689-05:00thank youBrooke has done so much better being at home. we are thankful/grateful that some of her support staff are helping out daily. her school, the learning tree, are coming over twice a day for a few hours to sit and help her. someone needs to be watching Brooke, even while sleeping because she still is exhibiting behaviors (hitting face) and wanting to scratch her back. speaking of which, Brooke has developed a rash on her back, either by the adhesive or iodine. it really is irritating to her. yesterday, after putting some cream on her back she hollered out, "thank you!" it was so appropriate and it made me smile and laugh:) I bought some new dressing for her back, so hopefully, coupled w the anti-itch cream she will be doing better.
she slept so well last night. it was the best sleep she has had since Monday. rest can do a lot of good, I've heard:) she woke up briefly, lifted herself up, got out of bed and went to the bathroom. I was shocked! she is still asleep:)
today, we will do more waking and sitting, plus, the doctor said she can take a shower!! she's been scratching her head so much...I know she'll feel tons better afterwards.
I didn't really tell you much about the actual surgery. dr. nimits said he was able to correct 80% of her curve with the placement of 2 rods. she did not have to have any blood transfusion. that was huge! she lost a bit, but they were able to save hers. all in all, the surgery went really, really well! I'm so thankful for skilled surgeons and nurses.
I'm so content caring for my girl. she is the brightest spot in my life and I love her dearly. Im so thankful for the Nelson's, the M's, and Rene and Patrick for taking care of our job responsibilities at the ABCH so we can be with Brooke during her recovery. I love you all. dani-gahttp://www.blogger.com/profile/18272311154681363258noreply@blogger.com0tag:blogger.com,1999:blog-27236780.post-40841862663908490442012-05-25T12:50:00.001-05:002012-05-25T12:50:59.281-05:00homeit's funny to me that the day surgery was originally set is the day we came home. it sure is good to be home.
these past couple days have been a journey. yesterday Brooke went to a room. we were suppose to stay there til Saturday or Sunday; but, don't tell Brooke she'll change it on you. last night she couldn't rest. her behaviors (from being in a different place) were making things very challenging. since we could not use wrist restraints her face, her arms, my arms, hands, and the nurses were getting a beating. it got better once she went to sleep but come "vital rounds" at 2:00am she got heavily upset. this in turn got me upset at the circumstances because she just doesn't understand. by 3:00 she was still going strong. after trying everything to get her comfortable I asked for some pain meds for her. at 4:00 she is still upset and gets another round of medication. by 5:30 I am mentally, physically exhausted. I asked the nurses for a transfer back to ICU. knowing her hands would be restrained and she wouldn't be harmful to herself, most importantly, and to others. they told me it couldn't happen. she was stable enough to be on a regular floor. however, they would get in touch with my doctor and ask for a transfer. long story short...brookes doctor said "you are free to go! she is medically stable enough to leave." wow.
we basically pulled everything together and got our orders to leave.
the ride home was good. Brooke walked right in and laid in the bed. her words, "it's ok."
(theres much more to share, but later... now we rest)
thanks for your prayers! dani-gahttp://www.blogger.com/profile/18272311154681363258noreply@blogger.com0tag:blogger.com,1999:blog-27236780.post-8760940186506256642012-05-24T08:41:00.001-05:002012-05-24T08:41:09.718-05:00walking dayBrooke had a good day yesterday. with help of a physical therapist she was able to sit on the side of the bed, take 2 steps, and sit in a chair for 30 minutes. we had hardly any behavior problems with her yesterday. go Brooke! she has continued to say, "it's okay" throughout her day; however, yesterday she formed a sentence of "I wanna go". I love those random sentences that are just too far in-between.
yesterday afternoon she took a few bites of solid food. even last night she had a little bit of food.
last night seemed hard for her. she was moaning a great deal so they gave her extra medicine to ease the pain. she didn't sleep really well last night.
this morning they removed the draining tube from her back which made her pain increase. they gave her extra medication. bill was here last night and early this morning.. he told me as we switched out that she kept asking for me. that's just precious.
today is a big day. she'll start walking today. I can't wait. sorta like your one year old learning to walk-for-the-first time-can't-wait. after she walks she'll go into a regular room.
pray that the Lord gives brooke understanding, peace on every side and that we have little to no behaviors as we transition to another floor.
thank you!!dani-gahttp://www.blogger.com/profile/18272311154681363258noreply@blogger.com0tag:blogger.com,1999:blog-27236780.post-18586124223374551372012-05-23T09:25:00.001-05:002012-05-23T09:25:12.375-05:00today's goaltoday Brooke is doing really well. I think her fear from yesterday has escaped her and she is much more at ease. however, today's plan is to get Brooke sitting up in the bed and possibly taking a couple steps to sit in chair, so this may disturb her some. the PT will come sometime today and encourage this movement.
her doctor wants her to stay in ICU again tonight. then to a regular room some time tomorrow. she will be the hospital, more than likely, til saturday. thank you for your continued prayers. dani-gahttp://www.blogger.com/profile/18272311154681363258noreply@blogger.com0tag:blogger.com,1999:blog-27236780.post-80456830144043620032012-05-22T17:51:00.001-05:002012-05-22T17:51:45.554-05:00tomorrow is coming..we are now in ICU. after we got in, she started to be rather alert. she kept saying, "it's okay," seemingly to try and convince herself that she was. along with her alertness came moaning and tears. she was given morphine and soon after seemed more comfortable. she has the strength of a horse and, at times, is pulling herself up to sit. with encouragement we are helping her just to relax. she has gotten sick twice because of medication. each time, having to change linen which upsets her. the language barrier is making me mad at autism. I wish I could jump in her head for a moment. we have her hands tied down because in the past she has pulled out IV's straight out of her arm. this, I think upsets her more, but I'd rather her be safe. my prayer is she stop fighting the pain herself and try and rest. i know she has got to be so tired. we will be in ICU til tomorrow sometime (if she is doing well).
thank you for your continued prayers. I know the Lord has her. she is a trooper and so brave. today has been tough, but tomorrow is coming. dani-gahttp://www.blogger.com/profile/18272311154681363258noreply@blogger.com1tag:blogger.com,1999:blog-27236780.post-73216737420046297772012-05-22T09:35:00.002-05:002012-05-22T09:35:20.996-05:00surgery updateBrooke has done remarkably well this morning..laughing, smiling, giggling.
she went back around 7:30 to put her to sleep. an ENT doc has already reported that she did not have anything lodged in her nose. he removed large amounts of wax from both ears.
they just called and said the surgery has already started and will report back in 1 hour. dani-gahttp://www.blogger.com/profile/18272311154681363258noreply@blogger.com0tag:blogger.com,1999:blog-27236780.post-56533546103197200632012-05-21T14:44:00.000-05:002012-05-21T14:44:10.481-05:00may 22, surgery setupdate: surgery set for Brooke, Tuesday May 22. we will be at womans/children's in our area. arrival is 6am with a 4 hour surgical procedure.
the MRI shown she was able to go on with the surgery. it Also showed that the majority of the scoliosis is lumbar area (mid to lower). therefore, the rod will not go all the way up towards the neck. this will give her some mobility issues. we will know more about that during her recovery. after surgery she will be in ICU then to a regular floor if there are no complications.
we are confident the Lords hand was in the move of the surgery to tuesday and confident she will do fine.
I will be blogging throughout the day tomorrow.
thank you for your prayers, love, and concern!! dani-gahttp://www.blogger.com/profile/18272311154681363258noreply@blogger.com0